Quick Answers
I need to learn more about optic nerve hypoplasia. Who can help me with this?
There are a variety of helpful resources that are available
to help you learn more about a medical diagnosis, such as
optic nerve hypoplasia. Many online sources have both
definitions and pictures of a variety of diagnoses. However,
some of those are intended for persons who have a medical
background, and may require further research to decipher the
full meaning of the diagnosis. Sometimes, there are
associations or organizations that are focused on one
disability or group of related disabilities, such as Focus
Families (www.focusfamilies.org)
or the National Federation of the Blind (www.nfb.org), which are related to vision
issues. Usually, they will have a site map on their home
page that will allow you to look at “publications” or “Fact
Sheets” or “FAQS”. These are typically brief, download-able
information sheets that provide a basic explanation of a
diagnosis. These publications usually provide a simple
definition, which uses terms that are easier to understand.
The Missouri Developmental Disabilities Resource Center (MODDRC) can provide information on developmental disabilities, low incidence disabilities, and topics relating to developmental disabilities. You can contact the MODDRC by calling 800-444-0821 or visiting the MODDRC website at www.moddrc.org.
Michelle Reynolds, Director of the Missouri Developmental Disabilities Resource Center, University of Missouri-Kansas City
Can't Find Your Question Here? Try Searching Our Quick Answer Knowledge Base
Last update: Friday, September 12, 2008
 |
Site Administrator: |
|
|
|